About Us

WELCOME

Who we are

The Australian Coalition for Endometriosis (ACE) is Australia’s peak body for endometriosis and pelvic pain, uniting patients, healthcare professionals, researchers, and advocacy organisations. We drive national collaboration, influence policy, and promote research investment to improve diagnosis, treatment, and support for the 1 in 7 Australians affected by endometriosis and pelvic pain.

Through strong partnerships with health professionals, government, and community organisations, ACE empowers those affected and advocates for meaningful, systemic change. In collaboration with our members, ACE led the development of the world’s first National Action Plan for Endometriosis.

What we do

In March 2024, ACE was formally recognised and funded by the Australian Government as the national peak body for endometriosis. Under this grant, our role is to:

OUR ROLE IN ENDOMETRIOSIS RESEARCH

Provide national leadership and representation for the endometriosis and pelvic pain community.

Serve as a repository of knowledge and sector expertise.

Inform the health sector on Australian Government health priorities.

Provide advice and feedback to government on policies and initiatives.

SUPORT FOR EVERYONE

How We Do It

Our inclusive membership model welcomes individuals, organisations, health professionals, researchers, and anyone with an interest in endometriosis and pelvic pain. Historically, only a select few had “a seat at the table.” ACE changes that by ensuring every voice counts and by amplifying the collective voice of our community.

We:

  • Share member updates, research, events, and resources.

  • Disseminate current knowledge to inform policy, practice, and public awareness.

  • Build collaborative momentum across the sector rather than relying on one single voice.

  • Run and manage Roundtable Priority Setting.

REAL WORLD PRIORITIES

Roundtable Priority Setting

Our “Roundtable Priority Setting” events invite participation from consumers, families, clinicians, researchers, advocates, industry, and government.

These events identify the real-world priorities that matter to Australians and shape our formal advice to government. ACE then collates the outcomes into a national public report of key themes and actions.

WHAT WE DO

What our funding supports

Through Commonwealth funding, ACE undertakes a broad range of activities, including:

Roundtable consultations

Public Reports

Sector engagement and secretariat coordination

Newsletters, webinars, and knowledge-sharing publications

These efforts contribute to strengthening the national workforce and improving the quality of care for people with endometriosis and pelvic pain.

Note: Endometriosis Australia also received funding under this agreement to deliver different activities. While originally involved in the formation of ACE, Endometriosis Australia chose to exit the Coalition in 2023.

ACE

Latest News and Updates

Funding Transparency

ACE is funded through a grant provided by the Australian Government. Like most government funding, this grant is delivered in stages, contingent on meeting agreed milestones and outcomes.

Ongoing funding is not guaranteed. We continue to advocate for sustainable support to ensure the voice of the endometriosis and pelvic pain community remains strong and heard. As a peak body, our funding does not fully cover the scope of work required—we remain resourceful, strategic, and focused on where we can make the greatest impact.

National Roundtables

ACE is currently leading a national roundtable consultation to identify key priorities for endometriosis and pelvic pain in every state and territory. Insights from these consultations will inform our 2025 report to the Australian Government, due in June.

Roundtables have already been held in Victoria, Queensland, and the ACT, with the remaining states and territories scheduled by May 2025.

Want to Participate?

Email us at info@acendo.com.au to register your interest.

Webinars, Newsletters & Sector Updates

Stay informed with the latest news from ACE and our members. We share updates on research, policy, events, and global developments in endometriosis and pelvic pain.

Members

  • Endometriosis Western Australia

    FOUNDING MEMBER

  • QENDO

    FOUNDING MEMBER

  • Pelvic Pain Foundation of Australia

    FOUNDING MEMBER

  • Endo Active

    FOUNDING MEMBER

  • Institute for Molecular Bioscience

    MEMBER

  • EndoZone Robinson - Research Institute, The University of Adelaide

    MEMBER

  • Women's Health and Equality Queensland

    MEMBER

  • Libby Trainor Parker - EndoDays

    MEMBER

  • Matilda, Curtin University

    MEMBER

  • The National Endometriosis Clinical and Scientific Trials (NECST) - University of New South Wales

    MEMBER

  • Queensland Fertility Group

    MEMBER

  • Australian Women and Girls' Health Research Centre

    MEMBER

Become a member