Endometriosis Coalition Presents Landmark Findings to Assistant Minister.
Media Release
ENDOMETRIOSIS COALITION
chair@endocoalition.org.au endocoalition.org.au
3-5 Hauteville Tce Eastwood
Endometriosis Coalition Presents Landmark Findings to Assistant Minister Rebecca White and Lisa Chesters MP, co convenor of Parliamentary Friends of Endometriosis Awareness.
FOR IMMEDIATE RELEASE
25 August 2025
The Endometriosis Coalition today presented Assistant Minister Rebecca White MP and Lisa Chesters, co convenor of Parliamentary Friends of Endometriosis Awareness its ‘National Endometriosis Priority Actions’—a strategic roadmap designed to transform care and outcomes for Australians living with endometriosis and pelvic pain.
The comprehensive findings from the largest consultation ever undertaken on endometriosis and pelvic pain in Australia. This landmark initiative, which gathered insights from hundreds of individuals affected by these conditions, healthcare professionals, and researchers, culminates in the proposed.
The consultation process, launched in 2024, involved a series of national roundtable consultations across every state and territory in Australia, focus groups with health workforce and researchers, and public submissions. This broad engagement captured a diversity of lived experiences and expert perspectives. The overwhelming response underscores the urgent need for systemic change in how endometriosis and pelvic pain are understood, diagnosed, and managed within the Australian healthcare system.
The suite of reports includes:
The National Endometriosis Roundtable Findings, and
Individual State and Territory Reports highlighting local challenges and priority areas.
Each report identifies the Top 3 Priority Actions, as voted by roundtable participants, nationally as well as by State and Territory.
National Top 3 Priorities
1. Access to multidisciplinary, collaborative care
2. Addressing the cost of living with endometriosis and pelvic pain
3. Education for the general public and upskilling the health workforce
Key Findings Highlight Critical Gaps
Delayed Diagnosis: Many individuals face an average eight-year wait for diagnosis, leading to prolonged suffering and disease progression.
Inadequate Access to Specialised Care: Limited, unaffordable, and inequitable care—particularly in regional and remote areas.
Insufficient Awareness and Education: Persistent misdiagnosis, stigma, and lack of empathy across society and the health sector.
Economic Burden: Substantial personal, family, and system costs associated with chronic pain and illness.
Mental Health Impact: High rates of depression, anxiety, and psychological distress linked to these conditions.
Introducing the National Endometriosis Priority Actions
The Endometriosis Coalition's 'National Endometriosis Priority Actions' outline five key pillars for immediate and sustained action:
Enhanced Public and Professional Awareness & Education: Develop integrate endometriosis and pelvic pain education into medical and allied health curricula.
Timely Diagnosis and Early Intervention: Implement standardised diagnostic pathways and fund research into non-invasive diagnostic tools.
Accessible and Comprehensive Care: Establish specialised endometriosis and pelvic pain centres and increase funding for multidisciplinary care teams.
Research and Innovation: Dedicate funding streams for endometriosis and pelvic pain research and promote collaborative research initiatives.
Support and Empowerment: Expand patient support services and advocacy groups, and develop resources for self management and peer support.
“The release of these findings and the ‘National Endometriosis Priority Actions’ marks a pivotal moment for millions of Australians,” said Jess Taylor, Chair of the Endometriosis Coalition.
“For too long, endometriosis and pelvic pain have been dismissed or misunderstood. This consultation provides irrefutable evidence of the profound impact of these conditions, and the Priority Actions offer a clear pathway forward to alleviate suffering and improve lives.”
The Endometriosis Coalition urges the Australian Government, healthcare providers, and policymakers to urgently adopt these recommendations.
The full report, including state, territory, and national findings, is available at: www.endocoalition.org.au/nationalreport
About The Endometriosis Coalition
The Endometriosis Coalition (formerly the Australian Coalition for Endometriosis, ACE) is Australia’s peak body for endometriosis and pelvic pain. It represents patients, healthcare professionals, researchers, and advocacy organisations, driving collaboration, policy change, and research investment. Through partnerships with health professionals, government, and community organisations, the Coalition empowers those affected and works toward systemic change.
Media Contact
Jess Taylor
Chair, Endometriosis Coalition
📞 0434 106 341
📸 Instagram: @endometriosiscoalitionau