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WELCOME

Who we are

The Endometriosis Coalition is Australia’s peak body for endometriosis and pelvic pain, uniting patients, healthcare professionals, researchers, and advocacy organisations. We drive national collaboration, influence policy, and promote research investment to improve diagnosis, treatment, and support for the 1 in 7 Australians affected by endometriosis and pelvic pain.

Through strong partnerships with health professionals, government, and community organisations, Endometriosis Coalition empowers those affected and advocates for meaningful, systemic change. In collaboration with our members, Endometriosis Coalition led the development of the world’s first National Action Plan for Endometriosis.

In March 2024, Endometriosis Coalition was formally recognised and funded by the Australian Government as the national peak body for endometriosis. Under this grant, our role is to:

  1. Provide national leadership and representation for the endometriosis and pelvic pain community.

  2. Serve as a repository of knowledge and sector expertise.

  3. Inform the health sector on Australian Government health priorities.

  4. Provide advice and feedback to government and policies and initiatives.

What our funding supports

Through Commonwealth funding, the Endometriosis Coalition undertakes a broad range of activities, including:

WHAT WE DO

Roundtable consultations

Public Reports

Two women standing in front of banners for the Endometriosis Coalition. One woman is holding a folder. Both women are smiling.
A woman presenting at a conference with two large screens displaying a slide behind her. The slide has a QR code and text about voting on top priorities. Audience members are seated at round tables, listening attentively in a bright, modern conference room.
A woman with short brown hair, wearing a colorful patterned shirt, is smiling and winking at the camera. The background includes logos and text related to the Endometriosis Coalition and The Digital Picnic event.
A woman in a green dress is speaking at a podium while an audience of diverse professionals listens outdoors in a green courtyard with trees and buildings in the background.

Newsletters, webinars, and knowledge-sharing publications

Sector engagement and secretariat coordination

These efforts contribute to strengthening the national workforce and improving the quality of care for people with endometriosis and pelvic pain.

Note: The Endometriosis Coalition also received funding under this agreement to deliver different activities. While involved initially in the formation of Endometriosis Coalition chose to exit the Coalition in 2023.

Four women standing together and smiling at a conference, with banners behind them displaying the logos for the Australian Coalition for Endometriosis and EndoServices.

SUPORT FOR EVERYONE

How We Do It

Our inclusive membership model welcomes individuals, organisations, health professionals, researchers, and anyone with an interest in endometriosis and pelvic pain. Historically, only a select few had “a seat at the table.” Endometriosis Coalition changes that by ensuring every voice counts and by amplifying the collective voice of our community.

We:

  • Share member updates, research, events, and resources.

  • Disseminate current knowledge to inform policy, practice, and public awareness.

  • Build collaborative momentum across the sector rather than relying on one single voice.

  • Run and manage Roundtable Priority Setting.

Women attending a conference or seminar, sitting at tables, with some taking notes and listening attentively.

REAL WORLD PRIORITIES

Roundtable Priority Setting

Our “Roundtable Priority Setting” events invite participation from consumers, families, clinicians, researchers, advocates, industry, and government.

These events identify the real-world priorities that matter to Australians and shape our formal advice to government. Endometriosis Coalition then collates the outcomes into a national public report of key themes and actions.

Latest News and Updates

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Funding Transparency

Endometriosis Coalition is funded through a grant provided by the Australian Government. Like most government funding, this grant is delivered in stages, contingent on meeting agreed milestones and outcomes.

Ongoing funding is not guaranteed. We continue to advocate for sustainable support to ensure the voice of the endometriosis and pelvic pain community remains strong and heard. As a peak body, our funding does not fully cover the scope of work required—we remain resourceful, strategic, and focused on where we can make the greatest impact.

A woman in a white shirt is speaking and gesturing with her hand at a round table with multiple women attending a meeting or conference in a room with modern decor.

National Roundtables

Endometriosis Coalition is currently leading a national roundtable consultation to identify key priorities for endometriosis and pelvic pain in every state and territory. Insights from these consultations will inform our 2025 report to the Australian Government, due in June.

Roundtable dates in all states and territories for 2026 are TBD.

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Want to Participate?

Email us at info@acendo.com.au to register your interest.

Webinars, Newsletters & Sector Updates

Stay informed with the latest news from Endometriosis Coalition and our members. We share updates on research, policy, events, and global developments in endometriosis and pelvic pain.

Members

  • Endometriosis Western Australia Inc. logo with stylized human figures and text

    Endometriosis Western Australia

    FOUNDING MEMBER

  • QENDO logo featuring a stylized pink bow inside a navy circle with the word QENDO underneath

    QENDO

    FOUNDING MEMBER

  • Logo of the Pelvic Pain Foundation of Australia, featuring an orange heart with a white cutout in the shape of a smaller heart.

    Pelvic Pain Foundation of Australia

    FOUNDING MEMBER

  • Pink circular logo with the words "Endo Active" in black and white text.

    Endo Active

    FOUNDING MEMBER

  • Logo of the University of Queensland Institute for Molecular Bioscience with university crest and text

    Institute for Molecular Bioscience

    MEMBER

  • Endo Zone logo with teal and beige circles and concentric rings

    EndoZone Robinson - Research Institute, The University of Adelaide

    MEMBER

  • Pink and purple gradient circular icon with two horizontal white bars in the center.

    Women's Health and Equality Queensland

    MEMBER

  • A graphic with the words 'Endo Days' in large white letters on a purple background, featuring a pink reproductive system illustration with yellow and orange accents.

    Libby Trainor Parker - EndoDays

    MEMBER

  • Matilda logo with slogan Endometriosis Care in your Pocket on a dark green circular background.

    Matilda, Curtin University

    MEMBER

  • An abstract logo with overlapping orange and purple curved shapes.

    The National Endometriosis Clinical and Scientific Trials (NECST) - University of New South Wales

    MEMBER

  • Queensland Fertility Group logo with a purple sphere and text

    Queensland Fertility Group

    MEMBER

  • Text logo for Women's Health Australia with purple and teal colors.

    Australian Women and Girls' Health Research Centre

    MEMBER

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