National Consultation Roundtables

The Endometriosis Coalition has led a series of consultation roundtables across Australia to bring together people living with endometriosis and pelvic pain, healthcare professionals, researchers, policymakers, and community advocates.

These roundtables were designed to capture lived experience, sector insights, and workforce perspectives to co-create a stronger, more coordinated national approach to endometriosis and persistent pelvic pain.

The voices of patients, carers, clinicians, and communities have informed the Coalition’s National Priorities Framework, ensuring decisions are grounded in real-world needs.

Top Priorities Identified

Through these discussions, participants across states and territories agreed on several cross-cutting priorities:

  • Expand training for GPs, nurses, imaging specialists, allied health, and educators to improve early diagnosis and management.

  • Address barriers for rural, remote, CALD, LGBTQIA+, First Nations, and low-income communities to ensure fair access to care.

  • Invest in collaborative, cross-institutional research and ensure findings translate quickly into practice and policy.

  • Strengthen Medicare rebates, embed multidisciplinary care models, and integrate digital health tools.

  • Expand peer support, health literacy programs, and awareness campaigns to reduce stigma and isolation.

Our Approach

The Methods

  • Hosted roundtables in every state and territory.

  • Included diverse voices – people with lived experience, clinicians, policymakers, researchers, and service providers.

  • Used co-design methodology, ensuring participants shaped both the agenda and the outcomes.

  • Documented themes and priorities through facilitated discussion, digital surveys, and post-roundtable feedback.

The Why

Endometriosis affects 1 in 7 Australians. Despite progress, access to timely, effective, and compassionate care remains fragmented. These roundtables ensure that national strategies reflect what matters most to those living with the condition and those working in the field.

The How

  • Collating state and territory insights into tailored reports.

  • Synthesising findings into a National Report that highlights shared priorities and unique regional challenges.

  • Embedding these priorities into the Endometriosis Coalition’s 2025–2028 Strategic Plan.

The Who

  • Consumers & Carers – people with lived experience of endometriosis and pelvic pain.

  • Clinicians & Researchers – GPs, gynaecologists, nurses, allied health, imaging, psychologists, and academics.

  • Community Organisations – not-for-profits, advocacy groups, and workplace representatives.

  • Government & Policy Leaders – representatives from state, territory, and federal health departments.

Explore the Reports

Each state and territory has its own tailored report capturing local priorities. These reports feed into the National Report, which presents the collective vision for coordinated action.