Consumers

ENDOMETRIOSIS & YOU

What is Endometriosis?

Endometriosis is a progressive, chronic condition in which cells similar to those in the lining of the uterus grow in other parts of the body. It most commonly occurs in the pelvis and can affect a woman’s and those assigned female at birth’s reproductive organs, however as of 2021 endometriosis has been found in every organ of the body.

Endometriosis Sector Events

ACTIVITIES & EVENTS

Endometriosis facts

Support for Endometriosis

Information to take to medical appointments

FACTS

Pelvic Pain

1 in 5 women and people live with pelvic pain.

Australian Coalition for Endometriosis in collaboration with members such as the Pelvic Pain Foundation of Australia seeks to build a healthier and more productive community by improving the quality of life of those with pelvic pain. Head to its website https://www.pelvicpain.org.au/ to access support, resources and information about PEPP Talk(link https://www.pelvicpain.org.au/ppep-talk-schools-program/) - the Periods, Pain and Endometriosis education for students in Year 9 and above.

RESOURCES

More Information About Pelvic Pain

Endometriosis: Shared Perspectives - Video Library

These resources were developed by Australian Coalition for Endometriosis member,  EndoActive and are supported by a grant from the Australian Government Department of Health.

QENDO APP

Free Endometriosis, Adenomyosis, Pelvic Pain PCOS and Infertility App - developed by Australian Coalition for Endometriosis member, QENDO.

PEPP TALK

PPEP Talk® is a fun, medically accurate and age-appropriate information session incorporating the modern neuroscience of pain, of benefit to all students, particularly the 1 in 4 girls and people assigned female at birth with severe period pain.

RACOG Raising Awareness Tool for Endometriosis

RATE is a a questionnaire developed by the Royal Australian College of  Obstetricians and Gynaecologists, which may help you and your doctor to recognise and assess symptoms that you have that may be associated with endometriosis.

WHERE TO GET HELP

Support across Australia

People seeking support from across Australia can connect with their local organisation through state-based or national services.